Saturday, May 11, 2013

A little midnight procedure. They put in an arterial line and redressed her picc line. Maybe she will get some rest now.

Finally resting after fighting with the doctors and nurses for the past several hours.

Continuing to Improve

Darby Kate is doing great. Brittney and I got to hold her for a short time today and I am glad the nurse talked me into it. I was really nervous to hold her with all the attachments on her but got over it and enjoyed every second. She had a small blood pressure issue this afternoon but it was short lived and she is tracking right along. She is still off of Epinephrin and on just a small dose of dopamine. She also got to move out of the surgical suite into a general room today. After a month and a half in the surgical suite it was a welcome move! Thank you for all the prayers, they mean more than we can ever express with words. I would also like to thank everyone for following our angel on Facebook, I am glad we are able to share this miracle with everyone. She is a prime example of what a mighty God we serve!

Brittney: I love this man to the moon and back!! He got to hold Darby Kate today and it flooded back memories of when we had Will and Darby Kate's first day of life. He is the best daddy and husband. He and I are getting through this with only a few occasions in our small living quarters that I've wanted to choke him until he turned almost the same shade of blue as Darby Kate!!! I love you Jason Roberts and I have no doubt that Darby Kate will be a daddy's girl!!

Big Day!

Today was a big day for Darby Kate.  She was taken off the ventilator just before lunch time and has remained stable.  She has enjoyed some tummy time and cuddling from Mommy.

Good Day

Darby Kate had a good day and is having a good night so far. I think it might be because her boyfriend, Dr. Alten, came back to town last night. The plans now, unless something changes, is to take her breathing tube out on Wednesday or Thursday and continue trying to keep the fluid off so the kidneys will start working again. She has lost close to 3 lbs of fluid since Tuesday. Thank you God for allowing us to witness this miracle in progress!! Thanks for the prayers.

Continuing to Make Progress

We are doing great around here. 324 more cc's of fluid removed last night. Yippee!! One step closer to the house!

11:30 p.m. We have had a great week and she has been weaned off her most of her meds. Tonight we have been battling a blood pressure issue and they had to start her Epinephrin & sodium bicarbonate back. Please say a special prayer that we do not lose all the weeks progress and we continue to move forward. Thanks and God Bless!!

Swelling

9:00 a.m. Darby Kate is still doing really good this morning. All of her numbers are normal but she is still holding a ton of fluids. This morning, please pray for the care team to be able to get her swelling down. With the amount of swelling she has, any set back would cause her not to be stable. Thanks for the prayers!

6:45 p.m. Darby Kate is still stable but very swollen. They are going to give her through the night to see if the peritoneal dialysis will start pulling off more fluid. If she does not have a large negative number by the morning they will push forward with her. She will start Continual Renal Replacement Therapy (CRRT). This therapy will pull fluid off much like ECMO did. The danger of this therapy is they will have to place a line in her subclavian which will pose a clot risk. She has done wonderful the past two days but we have to move forward because we still do not have any room to go in reverse. Please continue to pray!!

New Day

9:00 a.m. Darby Kate is still rocking it and has been stable all night and so far this morning. Thank you for all the prayers. Next time she wakes up I will post a picture of her. Thanks and God Bless!!

This is a top view of her watching shapes and colors go by on the TV!

 

9:45 p.m.  Darby Kate is still doing great. She got a bath earlier and is feeling froggy!! Amy (her RN) turned her over about 30 minutes ago and she is still mad about it, because she is turned away from her TV!! We are praising our almighty God for the blessings in our life.

Will says he has the CVICU at Children's of Alabama covered!