A Tough Update

I am sorry that we have not updated a lot in the last few days. This update has been a hard one. Dr. Alten met with Jason and I this morning. Darby Kate's last couple of days haven't been good. We are on the transplant list but she is not at a healthy point that she would be eligible to receive a heart if one became available. Dr. Alten wants a couple of days to pull fluid from her body and see how her body reacts. If her lungs and such do not seem to be any better then we have no other option. He promised us that he would let us know when it got to the point of doing stuff "to her" and not "for her".
We are at that point.....He will tell us Wednesday or Thursday if there has been miraculous improvement. If there hasn't, then we will be making the decision to turn the ECMO off. We haven't lost hope and we know it's still in God's hands. He does work miracles but at the same time we have to start preparing for reality. We are both at peace in knowing if Darby Kate's little body gives out that she will be in Heaven for eternity. She would never of had to sustain any evil, heartache, or sadness from this cruel world we live in. For that we would rejoice!! Without a miracle she will be traveling to a place we all long to go and will no longer have a broken heart. Please pray for God to give us strength through the most difficult thing that Jason and I have encountered. Thank you all for being with us on this journey. We know you have helped get us through this with your prayers and we will be forever grateful!!!